Monday, September 24, 2012

Updates September 24, 2012

If you talk to Roger, he will say he is doing okay not great but okay.  And while this is true for him, I have trouble internalizing what he means by this.  That he just doesn't want to divulge much to the people who ask because he is embarrassed by the situation of being physically weakened, or maybe he believes if he says it enough it will be true.  Or maybe I'm just too close to the situation.

Wednesday will be the 3rd Taxotere (chemo) infusion.  oh, I need to back up

On September 5th, Roger received the 2nd infusion, 10 days later, on a blood lab, he had almost no white blood cells, so received a Nuepogena shot (blood booster in simplified terms), and another shot the day after.  He received one shot after the 1st infusion, two shots after the 2nd infusion.
(By the way, the second shot... we had to drive to Fayetteville, on a Saturday, game day, home game... easy getting home)

Diarrhea and hemorrhoids have gotten progressively worse over the course of his treatment.  To the point of needing to see a colon rectal specialist, which is scheduled in the first week of October.  Don't know when, but we did receive the paper work.  It is on my list of 1st priority items.

Speaking of 1st priority items, we are still waiting for urostomy supplies.  Roger cannot receive any more supplies through insurance until the urologist's office approves the order.  No orders have been approved yet, and we've received supplies since mid June.  The supply company will let orders go through without approval for 3 months at a time, so that is another thing I have on the list.  Have already called twice last week to the doc, and once to the supply place.

Sigh.....

Roger takes a nap most days, he will sleep 4-5 hours during the night and the lack of nighttime sleep catches up with him sometimes,  sometimes he takes a sleep aid during the day.  He needs help sleeping because he fights sleep like no one I've ever seen.  He will complain of being tired, and yet, move around so he won't fall asleep. And then the bleeding in the bladder has started up again.

Just a discombobulated update.  Roger can't stand to let me sleep when he is awake.
So I'm a little weary too.

Love to all